by Dianne | Feb 20, 2012
Today could be a big day for Tyler. He may be switched from the Oscillator to a conventional ventilator with APRV settings! APRV cycles between high lung volumes and low lung volumes and will allow Tyler to breathe spontaneously at either level. This is opposed to the...
by Dianne | Feb 19, 2012
Looks like a multiple post kind of day…we’re learning that information trickles in hour by hour. Ron and I had a chance to speak to the Attending after rounds today, and despite Tyler’s vent settings going back up, there is some very heartening news...
by Dianne | Feb 19, 2012
When Tyler was home over Christmas, he was feeling better every day. He was very aware that when he went back to the hospital on 1/17, he would be getting much sicker again. I suggested that “healthy Tyler” create an iTunes playlist for “sick...
by Dianne | Feb 19, 2012
Tyler took a step back yesterday. They had to take his vent pressure up, oxygen up, and give him dopamine to stabilize his blood pressure. Yesterday I was overjoyed, but today I am reminded that this is going to take some time. There will be many peaks and valleys in...
by Dianne | Feb 18, 2012
When the doctors met with us three days ago for what we thought was a normal care planning meeting, Tyler’s ICU attending doctor blindsided us by telling us our son needed a miracle. He told us how diseased Tyler’s lungs and other organs were. He...
