on the road to transplant!

Yesterday Tyler and I went to Clinic while Ron and his sister took down the Christmas decorations.  That means this season I got out of my two least favorite activities of the year – decorating the house and taking down the decorations!   Thank you to my...

good news!

Passing on a wonderful email message we got from Tyler’s doctor regarding the testing he had last week: I just wanted to let you know that Ty’s repeat echocardiogram looked good, with  normal function of the pumping chambers of his heart (ventricles). And...

happy new year!

Tyler is still loving his time at home – we ALL are!  Tomorrow and Friday he faces some of the drudgery of medical follow up back at Hopkins again.  Thursday’s appointments include diagnostic lab studies, a sinus CT scan, a chest x-ray, pulmonary function...

an incredible year

Tyler’s Facebook status on the last day of 2011: “It’s been an incredible year.” Yes it has, Tyler.  Yes it has.

enjoying home

Still doing great!  Tyler has gained a few pounds since coming home – still a long way to go, but we’re thrilled with his progress.  He is feeling stronger each day.  He’s been sleeping very well, which is such a blessing and change from the terrible...