by Dianne | Mar 26, 2012
They were unable to go up on the dose of the new medication, tranexamic acid; in fact, they had to discontinue it pending reapproval since Tyler’s bleeding did not improve after the first 24 hours. He is getting another dose of Factor VII and going back on...
by Dianne | Mar 26, 2012
Today is a new day. Tyler’s bleeding hasn’t slowed down on the new drug, so they will increase the dosage. He continues to retain fluid and be more swollen. We are praying so hard for him to get better. I keep envisioning him with a full head of hair, working on his...
by Dianne | Mar 25, 2012
Every day I hope for signs of healing, but I would also accept just a simple, boring day in the PICU! Over the past two days, less and less blood could be pulled back from Tyler’s OG (oral gastric) tube. Despite his increased distension, the doctors were hoping...
by Dianne | Mar 25, 2012
Ty continues to be stable, but with a LOT of work on the team’s part. In addition to the amicar to help stop his bleeding, he got another treatment of Factor VII yesterday. Later today the amicar will be replaced with tranexamic acid, which is more powerful than...
by Dianne | Mar 24, 2012
As of this evening, Tyler has finally stabilized. He is better sedated, his blood pressure needs less support, his coloring is better, and his red blood counts are once again hitting the goal levels when he receives blood products. They were able to avoid placing...
