setback – prayers needed
Just a quick update - more details later after rounds. Despite doing great on the APRV vent and having his settings decreased last night, Tyler had to be switched back to the Oscillator at 6:30AM. His blood gases showed too much CO2 in his blood. He also spiked a...
vents switched!
I originally tried to post this two hours ago so as not to keep you all waiting for news, but for some reason when I just checked, my post wasn't there. Due to the delay, I can share a story. Dr. Gamper, Tyler's transplant doctor, recently stopped by to chat. Ron...
vent switch-over delayed
The vent switch-over isn't going to happen today. We thought it was going to happen at 3pm when they brought the new vent into his room. However, they first wanted to make sure he could tolerate a reduction in pressure on his oscillator. While he did very well under a...
moving in the right direction
Today could be a big day for Tyler. He may be switched from the Oscillator to a conventional ventilator with APRV settings! APRV cycles between high lung volumes and low lung volumes and will allow Tyler to breathe spontaneously at either level. This is opposed to the...
beautiful freckles
Looks like a multiple post kind of day...we're learning that information trickles in hour by hour. Ron and I had a chance to speak to the Attending after rounds today, and despite Tyler's vent settings going back up, there is some very heartening news she told us....
encouragement from tyler
When Tyler was home over Christmas, he was feeling better every day. He was very aware that when he went back to the hospital on 1/17, he would be getting much sicker again. I suggested that "healthy Tyler" create an iTunes playlist for "sick Tyler" that would...
update from ron
Tyler took a step back yesterday. They had to take his vent pressure up, oxygen up, and give him dopamine to stabilize his blood pressure. Yesterday I was overjoyed, but today I am reminded that this is going to take some time. There will be many peaks and valleys in...
still fighting!
When the doctors met with us three days ago for what we thought was a normal care planning meeting, Tyler's ICU attending doctor blindsided us by telling us our son needed a miracle. He told us how diseased Tyler's lungs and other organs were. He recommended a Do...
ideopathic pneumonia syndrome
Everything has come back negative from the bronchoscopy - no bacteria, fungus or viruses. This means that as Dr. Gamper suspected three days ago, Tyler has Idiopathic Pneumonia Syndrome. IPS can be caused by the Busulfan treatment Tyler had, by a blood transfusion,...