by Dianne | Mar 18, 2012
Part Two of a Post from Ron: Today is my birthday, and I can honestly say that I still have a lot of growing up to do. It has been nearly five weeks since Tyler was originally placed on an oscillatory vent. He was supposed to be on the oscillator short term before...
by Dianne | Mar 17, 2012
Tyler’s blood gases remain wonderful, so they have weaned him down a bit more on the ventilator. All his vital signs are terrific with every wean. He is opening his eyes more and with purpose. I can’t tell you enough how amazing it is to look into those...
by Dianne | Mar 17, 2012
Part I of a two-part post from Ron: Well, it St Patrick’s Day, and I can honestly say we have one strong paddy lying in the PICU at Johns Hopkins. Tyler is an astonishing individual who has overcome insurmountable health crises since he began his cancer journey...
by Dianne | Mar 16, 2012
Ron and I just keep breaking out in big, goofy grins today. Tyler has become something of a spectacle on the unit – the staff slow down and peer in as they walk past his room. Lots of smiles all around! The day shift from yesterday surely didn’t expect to see...
by Dianne | Mar 16, 2012
Sorry no updates before now – I slept longer than intended after the craziest and most adrenaline-inspiring 24 hours I’d ever had! I am headed back to the hospital but spoke to Ron briefly. Ty is doing very well still on his conventional ventilator! The...
