six months after diagnosis and a long road ahead

Tomorrow (March 6th) marks 6 months since I first brought Tyler to the ER in September, and it also happens to mark 3 weeks on life support. Before his doctors knew Tyler had a particularly nasty subtype of AML that would require a bone marrow transplant, we were...

a calmer day

Tyler is having a fairly stable day after all the upset yesterday. His right lung is still not completely reinflated, so his oxygen sats remain in the low 90s. He is still on the higher ventilator pressures, and they are doing no weans for awhile in order to maintain...

collapsed lung

My heart is finally beating a little more steadily after the day we’ve had. This morning Tyler’s oxygen sats were dropping, and kept dropping despite being suctioned and given more oxygen. A chest x-ray revealed that the entire upper lobe of his right lung had...

when ups become downs

So it ended up being another of those up and down days. Tyler’s lungs did NOT like being dropped to a Delta p of 58 earlier today. His CO2 gases were very high – one time going above 100 – and he had to be brought up to 65, where he remains now....

things are looking up

Things are looking up again today: Tyler’s blood pressures stabilized overnight, his fever improved (it was as high as 104), and his heart rate came down. At rounds this morning the doctor said Tyler’s lungs are looking better on x-ray with a lot less...