by Dianne | Mar 8, 2012
Tyler had a pretty bad gastric bleed today, so they ended up taking him off the defibrotide (which causes bleeding) and keeping him at a Delta p of 58. The bleeding is either from an ulcer or gastritis, likely due to all the steroids he’s taking. One more thing...
by Dianne | Mar 8, 2012
So far we’re having a stable day with some improvements as well! His collapsed lung is no worse and no better than yesterday, so he remains on a higher airway pressure. His blood gases were decent enough for them to wean him down to 58 on the Delta p. Toward the...
by Dianne | Mar 7, 2012
Tyler’s collapsed lung looked much better on x-ray this morning, and his O2 sats are on the rise! His left lung is showing some overall improvement as well! He will remain on the higher airway pressure until he can sustain his O2 levels and until the next x-ray...
by Dianne | Mar 6, 2012
I forgot to mention that we were given the opportunity to move into St. Casimir, the transplant housing that is operated by Believe in Tomorrow. We checked out of the hotel this morning and got settled in our new little apartment in the Canton area of Baltimore City....
by Dianne | Mar 6, 2012
Tyler was less stable today. His blood pressures and oxygen sats kept dropping. His right upper lobe had not improved at all from yesterday’s chest x-ray, so he had to go up on his airway pressures again to try to get his lung inflated. The total arsenol they...
