God’s taking care of us

I just have to share some stories of how God is taking care of us during this ordeal.  The past few weeks, we’ve had serious car trouble.  Our car had to go to the shop twice in three days, with a really huge repair cost.  While our car was in the shop for the...

walking and eating are difficult

Tyler continues to improve.  The past two days, we were kind of shocked at how difficult it was for Tyler to start walking again.  He actually could barely even stand.  After a blood transfusion and a bolus, today he walked from one side of the room to the other, and...

much better

Yesterday evening was a real turning point for Tyler healthwise.  He FINALLY got a full night’s sleep – 7 hours – then got a 3.5 hour nap today as well.  His GI issues have mostly resolved, and he’s been fever free.  Today they cut his...

scans and scopes

Since Tyler has continued to carry a low grade fever, he had a CT scan with contrast of his sinuses, lungs and abdomen yesterday to see what other possible infections may be hiding in there.  The scan showed possible areas for concern in all three locations.  Today...

four days of misery

Tyler’s severe GI distress in response to the antibiotics and mucositis continues.  In the past four days he’s gotten about 5 hours of sleep total.  It is taking a toll.  The sores in his mouth are practically gone, but apparently this time the mucositis...