by Dianne | Dec 9, 2011
Tyler’s still feeling very sick, but showing definite signs of improvement. He was wide awake all last night and most of today due to an incessant cough. His viral testing came back negative, but because of the cough, he remains in isolation. Tyler is...
by Dianne | Dec 8, 2011
Tyler is holding his own. His cultures today still showed bacterial growth; so he’s still fighting infection. At one point his fever hit 103.8. Tyler needed more platelets today. The good news is they determined it wasn’t the platelets yesterday that...
by Dianne | Dec 8, 2011
We’re exhausted, Tyler most of all. Starting at 4 AM yesterday, Tyler began throwing up frequently. His constant dry cough became very loose. Every time he coughed, he vomited. Every time the mucous from his mucositis got unmanageable, he vomited. Just...
by Dianne | Dec 6, 2011
As I write this, it’s exactly three months to the minute (midnight) that we found out Tyler had leukemia. It’s so hard to believe that he was admitted to JHH with a diagnosis of AML that long ago. In some ways the time has sped by (how can it be December...
by Dianne | Dec 6, 2011
Today and yesterday were bad days. His mucositis progressed at a fast and furious pace. By yesterday evening, he was unable to speak or swallow easily, so the decision was made to try an NG tube again. By midnight, they stopped trying and gave him a break until...