picu update

Ty is stable in the ICU – it looks as though they got to his infection before sepsis set in. It’s possible nothing will grow on his cultures, and they’ll never be able to identify his infection. The thought is that one of the mucositis sites in his...

please pray

Tyler was taken to the ICU early this morning after a very rough night. He has an infection, but they still can’t identify the source.  He’s receiving heavy hitting antibiotics and antifungals. Because his blood pressure’s been dipping dangerously...

let the waters rise

A lot of the music I listen to on 95.1 Shine FM has really been getting me through some rough times.  This one, by MikesChair, is one of Tyler’s and my favorites.  It’s called Let the Waters Rise. ...

two months

How fitting that to mark the two-month anniversary of Tyler’s initial admission to Hopkins with AML, we find out that Tyler has a SECOND perfectly matched bone marrow donor!  This lets the transplant team choose carefully between the two donors, possibly...

grade 3 skin toxicity

Quick update from this morning’s entry:  turns out the rash (which now has spread over his entire body) is grade 3 skin toxicity related to the sorafenib, not folliculitis.  Grade 3 is the highest level of toxicity, and means they had to discontinue his...