still waiting
The cells just arrived at the hospital (11:15 PM). We're now looking at about 1:00 AM for his transplant. Ron, Tyler and I are just hanging around the hospital room watching sitcoms while we wait. Because of the length of time for the transfusion of cells and then...
delayed arrival of the donor cells
Tyler's donor cells will be arriving on a later flight and won't be here until after 9:30 PM. The Hopkins lab then needs about two hours to remove the red cells. So the earliest it will arrive in his room is about 11:30 tonight. The transfusion itself will take up...
transplant tomorrow night!
Please be praying that everything comes together today and tomorrow for Tyler's transplant. We don't know the exact timing of anything since the collection is happening in Europe, and the stem cells then have to be flown to Maryland, delivered to Hopkins and treated...
bad reaction, good results
After 2 hours of sleep last night, Tyler woke up having a bad reaction to the latest anti-nausea medication they were trying. The good news is the medicine took care of his nausea; the bad news is he suffered terribly from the reaction until he finally fell asleep at...
relentless nausea
Still no improvement on the nausea - it is relentless this time around. Throwing up provides no relief, only pain from his pulled muscles, and the 5 different medications they are trying aren't helping him. Please pray that he can get some sleep tonight as an escape...
sick
This morning Tyler had his last dose of Busulfan and his first dose of Cytoxan. The chemo finally caught up with him, and he hasn't been able to keep anything down today. He feels absolutely miserable. For the next 3 days he'll get only the Cytoxan. Please pray...
back at johns hopkins
Tyler was admitted as planned on 1/17/12. He started his first preparative chemo, Busulfan, that evening. The plan is to get this every six hours for four days, then move to the second chemo, Cytoxin. Busulfan's main side effect is seizures, so Ty's on Dilantin to...
on the road to transplant!
Yesterday Tyler and I went to Clinic while Ron and his sister took down the Christmas decorations. That means this season I got out of my two least favorite activities of the year - decorating the house and taking down the decorations! Thank you to my wonderful...
good news!
Passing on a wonderful email message we got from Tyler's doctor regarding the testing he had last week: I just wanted to let you know that Ty's repeat echocardiogram looked good, with normal function of the pumping chambers of his heart (ventricles). And even more ...