blessing in the midst of chaos
Just after I sent my last post, Tyler started to crash. The team came running and was able to get him stabilized fairly quickly. He is now receiving the higher dose of Factor VII, and we’re praying hard that it makes the difference over the next 24 hours. I am posting...
decompensating before our eyes
As it ended up, there is only one option that can be implemented quickly enough to save Tyler from his current crisis. He is decompensating before our eyes - bleeding so quickly that he's on the highest doses of pressors to keep his blood pressure from bottoming out....
facing some decisions
Tyler's bleeding continues despite blocking the left gastic artery, which is the main artery that leads to the stomach. This supports the fact that Tyler's bleeding is spread out over his entire stomach (diffuse). We had so hoped the angiogram and embolizing would be...
angiogram completed
Tyler's back in his room following the angiogram. He remained stable throughout! They found no source of bleeding whatsoever, but since they knew the blood had to be coming from one of the vessels leading to his stomach, they went ahead and temporarily blocked his...
angiogram
If you can take a moment to pray right now, Tyler is at this moment undergoing a two to four hour angiogram under general anesthesia. Any procedure is risky for him; this one especially so. A lot happened last night. Tyler’s type of bleeding changed overnight to a...
update
They were unable to go up on the dose of the new medication, tranexamic acid; in fact, they had to discontinue it pending reapproval since Tyler's bleeding did not improve after the first 24 hours. He is getting another dose of Factor VII and going back on amicar in...
God knows
Today is a new day. Tyler’s bleeding hasn’t slowed down on the new drug, so they will increase the dosage. He continues to retain fluid and be more swollen. We are praying so hard for him to get better. I keep envisioning him with a full head of hair, working on his...
bleeding at a faster rate
Every day I hope for signs of healing, but I would also accept just a simple, boring day in the PICU! Over the past two days, less and less blood could be pulled back from Tyler's OG (oral gastric) tube. Despite his increased distension, the doctors were hoping less...
second prayer vigil
Ty continues to be stable, but with a LOT of work on the team's part. In addition to the amicar to help stop his bleeding, he got another treatment of Factor VII yesterday. Later today the amicar will be replaced with tranexamic acid, which is more powerful than...