stabilized
As of this evening, Tyler has finally stabilized. He is better sedated, his blood pressure needs less support, his coloring is better, and his red blood counts are once again hitting the goal levels when he receives blood products. They were able to avoid placing...
a see saw
The see saw continues. Ty had a terrible night. One crisis after another meant he wasn't able to get blood products when he needed them and even ran out of one of his sedatives at one point. A serious issue is that one of his PICC line lumens is now clogged, so he...
glimmers of good things
Some glimmers of good things tonight after a day of uncertainty...please pray the current trajectory continues!
wrong direction
Compared to three units of red blood total yesterday, Ty has needed seven today. He is clearly bleeding more, and that's with the support of the clotting medication. Definitely a change in the wrong direction from yesterday! Other than giving him more blood products,...
more challenges
Tyler's presenting with a few more challenges for his medical team. Please keep praying hard for the blood to finally move out of his body and for his tissue to heal and stop bleeding!
a new plan
I know it’s been way too long without an update, but most of the day I haven't known which end is up. We have had a series of back-to-back meetings and discussions with doctors today. A lot has changed and a lot has stayed the same. The same: Tyler still needs...
no surgical options
We’ve completed our meeting with an adult surgeon, pediatric surgeon, and the rest of the team as far as the possibility of surgery. Our pastor attended the meeting with us and summarized as follows in a prayer request sent to our church. I just wanted to extend that...
no more medical options
Ty's condition is now complicated by an obstruction that is preventing the blood in his stomach from passing out of his body. This is very painful. The blood is pooling there in increasing volumes, causing his stomach to stretch painfully and risk perforating as he...
heavily sedated again
The "out of the box" med doesn't appear to be working. Tyler's abdomen is more distended and hard, and they are pulling lots more blood out of his stomach through his oral gastric (OG) tube. He is at this moment receiving 3 units of blood because his blood counts...