walking and eating are difficult
Tyler continues to improve. The past two days, we were kind of shocked at how difficult it was for Tyler to start walking again. He actually could barely even stand. After a blood transfusion and a bolus, today he walked from one side of the room to the other, and...
much better
Yesterday evening was a real turning point for Tyler healthwise. He FINALLY got a full night's sleep - 7 hours - then got a 3.5 hour nap today as well. His GI issues have mostly resolved, and he's been fever free. Today they cut his Vancomycin dose in half. Also,...
scans and scopes
Since Tyler has continued to carry a low grade fever, he had a CT scan with contrast of his sinuses, lungs and abdomen yesterday to see what other possible infections may be hiding in there. The scan showed possible areas for concern in all three locations. Today...
four days of misery
Tyler's severe GI distress in response to the antibiotics and mucositis continues. In the past four days he's gotten about 5 hours of sleep total. It is taking a toll. The sores in his mouth are practically gone, but apparently this time the mucositis is affecting...
still in isolation
Tyler's still feeling very sick, but showing definite signs of improvement. He was wide awake all last night and most of today due to an incessant cough. His viral testing came back negative, but because of the cough, he remains in isolation. Tyler is definitely...
update on tyler’s condition
Tyler is holding his own. His cultures today still showed bacterial growth; so he's still fighting infection. At one point his fever hit 103.8. Tyler needed more platelets today. The good news is they determined it wasn't the platelets yesterday that made him...
trying to stay out of the picu
We're exhausted, Tyler most of all. Starting at 4 AM yesterday, Tyler began throwing up frequently. His constant dry cough became very loose. Every time he coughed, he vomited. Every time the mucous from his mucositis got unmanageable, he vomited. Just about...
three months
As I write this, it's exactly three months to the minute (midnight) that we found out Tyler had leukemia. It's so hard to believe that he was admitted to JHH with a diagnosis of AML that long ago. In some ways the time has sped by (how can it be December already?);...
fast and furious
Today and yesterday were bad days. His mucositis progressed at a fast and furious pace. By yesterday evening, he was unable to speak or swallow easily, so the decision was made to try an NG tube again. By midnight, they stopped trying and gave him a break until...