and the dreaded side effect is back
Well, we knew it was a possibility, and sure enough, on day 10 of this hospitalization, Tyler's mucositis is back. Later today he will be getting a pain pump so he can at least tolerate drinking. Right now his tongue and throat hurt too much to either eat or drink. ...
so far so good!
Tyler's last IV chemo was Wednesday morning. He never got the expected eye infection with the high dose Ara-C and no longer has to take the steroid drops! He started taking the sorafenib Wednesday night, and unfortunately almost immediately started back with the...
update on chemo course #3
Tyler's course so far since he arrived back at the hospital has been a little touch and go, but mostly he's felt pretty well in comparison with the last few weeks. The high dose Ara-C is causing headaches, nausea and vomiting, but it seems mostly to be contained to...
tyler’s donor is official!
The transplant team has selected the donor for Tyler! Between the two 10 out of 10 matches, a 43-year-old man from Europe (still don't know what country) proved to be the best match. He does not have the same blood type, so Ty's blood type will actually change to...
home sweet hopkins
Tyler's post on Facebook today was "Home Sweet Hopkins." Here we are again, this time for chemo course #3. To update you on Tyler's home visit, which started a week ago today, it was kind of topsy turvy. He certainly wasn't the same boy he was on his first home...
tyler’s post
Tyler's Facebook status today said, "I really, honestly love all of you." Tyler may be feeling weak, miserable, shattered by his appearance and isolated from his social life. He may be facing a very uncertain future. But he is also feeling embraced and loved in ways...
am i angry at God?
Many folks over the past 2 ½ months have expected me to be angry or questioning over Tyler’s cancer. I’ve decided to journal my thoughts on this and post it for others to read. I’ll probably go on for quite a while, so please bear with me or just skip this entry all...
home again!
Tyler made counts today, and he is HOME!!!
flashes of hope
My son is my hero. About a month ago, he reluctantly agreed to participate in a free professional photo shoot offered to oncology patients, called Flashes of Hope. Our appointment was set for November 17th at 9:30 AM. Tyler hates having his picture taken. But his...