two months
How fitting that to mark the two-month anniversary of Tyler's initial admission to Hopkins with AML, we find out that Tyler has a SECOND perfectly matched bone marrow donor! This lets the transplant team choose carefully between the two donors, possibly...
grade 3 skin toxicity
Quick update from this morning's entry: turns out the rash (which now has spread over his entire body) is grade 3 skin toxicity related to the sorafenib, not folliculitis. Grade 3 is the highest level of toxicity, and means they had to discontinue his treatment for...
turning a corner
It's strange to be saying Tyler seems to be turning a corner when he's still as sick as he is. In addition to the problems of earlier this week, he's now considered a "falls risk" given his extreme weakness. He also has broken out in a rash on his legs. They...
a bad news – great news kind of day
The rapid cycling of good things - then bad things - then good things happening in one day is making me dizzy! The day started off great, with Ty finally getting his chemo and some nourishment through his new NG tube. Unfortunately, he felt terrible and remained in...
ng tube – take two
The past 24 hours have probably been some of the worst of this whole ordeal, and that's saying something. After how horrible the NG tube placement experience was yesterday, I immediately started internally fretting about how he was going to go through it again a...
ng tube
Tyler had an NG tube placed a few hours ago. That was a trauma neither he nor I is ever likely to forget, made much worse by the pain of his mucositis. Now that it's done, the hope is he will have relief on the horizon. He will get all nutrition via the tube, as...
a turn for the worse
Oh boy. Oh boy. Things can sure change quickly on a cancer ward. Since Tyler's first course of chemo, we've been warned about the symptoms that could develop; one of those symptoms is a condition called mucositis. We were so blessed that during his first course,...
in pain
Tyler's been back in the hospital for ten days now. He completed his three IV chemos on Friday, but the cumulative effect continues to build in his body. With this second course, he is getting closer to receiving the life-time limits of these very damaging drugs....
a positive attitude
I was finally well enough to see Tyler yesterday evening! Praying I stay healthy for a long, long time so I don't have to go through that separation again. Tyler still feels bad; he's nauseated and is getting sores in his throat. It's hard for him to eat/drink, but...