angiogram completed
Tyler’s back in his room following the angiogram. He remained stable throughout! They found no source of bleeding whatsoever, but since they knew the blood had to be coming from one of the vessels leading to his stomach, they went ahead and temporarily blocked his left gastric artery. We should know by this evening if […]
facing some decisions
Tyler’s bleeding continues despite blocking the left gastic artery, which is the main artery that leads to the stomach. This supports the fact that Tyler’s bleeding is spread out over his entire stomach (diffuse). We had so hoped the angiogram and embolizing would be the treatment Tyler needs. Ron and I are now back to […]
decompensating before our eyes
As it ended up, there is only one option that can be implemented quickly enough to save Tyler from his current crisis. He is decompensating before our eyes – bleeding so quickly that he’s on the highest doses of pressors to keep his blood pressure from bottoming out. There isn’t much wiggle room at this […]
blessing in the midst of chaos
Just after I sent my last post, Tyler started to crash. The team came running and was able to get him stabilized fairly quickly. He is now receiving the higher dose of Factor VII, and we’re praying hard that it makes the difference over the next 24 hours. I am posting now to share an […]
bathed in prayer
Last night Ron, my sister Karen, and I stayed with Tyler since the outcome wasn’t looking good. Tyler was able to be stabilized somewhat, but only with 6 units of blood, 2 of platelets, 2 of FFP, and being given 100% oxygen. He’s received 6 of his 12 doses of Factor VII yet is still […]
doors are closing
For the first time, Ty’s strong, strong heart seems to be failing under the pressure it’s under. They are now adding a third medication to keep his blood pressure up. He is still losing blood as fast as it is transfused in. His liver and spleen are enlarged and contributing even more to how distended […]
vicious cycle
Tyler’s multi organ involvement is getting worse. One organ is affecting the performance of the next. His echocardiogram yesterday revealed that his left ventricle is only performing at 22% capacity. This affects his lungs and liver. His kidneys have had minimal to no output for 24 hours, not responding to diuretics. Today they will ultrasound […]
tyler wins!
Our precious, precious son has found his complete healing not on this earth, but in Heaven. He is whole and not suffering; he is singing praises right now to the God he loved!! Tyler’s valiant fight for life ended on March 29, 2012, at 5:45 PM, at the age of 15 and 5 months. He […]