trying to avoid the picu

Tyler narrowly avoided the ICU all last night.  His blood pressure had to be monitored every 15 minutes, and his fever wouldn’t break.  Tyler had almost no sleep and was incoherent at times.  They added Vancomycin to his other heavy hitting antibiotics.  A...

rough day

Tyler was pretty miserable today.  He’s just sick and tired of being sick and tired.  We thought he was starting to feel better, but then he spent the afternoon retching from his mucositis.  His blood pressures dropped very low right about the same time he...

a new concern

Tyler’s fever remained high this morning, and a new concern arose. Tyler’s bilirubin levels have steadily increased over the past few days. Post-transplant, this is usually an indication of Veno-Occlusive Disease (VOD). VOD is when the small veins leading to the liver...

and the storm arrives

Tyler was doing really well until this morning, and for that we are so VERY thankful!  Today he developed full blown mucositis and has had a fever.  He’s on a broad-spectrum antibiotic while they wait to see if the cultures grow anything identifiable.  His...

the calm before the storm

Just a quick update.  Tyler continues to do well!  He is in the calm-before-the-storm phase.  The immediate effects of the chemo and transplant are mostly over, except for fatigue.  His counts are dropping lower, and the early stages of mucositis started last night. ...