Tyler’s Journey…

I forgot to mention that we were given the opportunity to move into St. Casimir, the transplant housing that is operated by Believe in Tomorrow. We checked out of the hotel this morning and got settled in our new little apartment in the Canton area of Baltimore City. Normally we only would have come here […]

Tyler’s collapsed lung looked much better on x-ray this morning, and his O2 sats are on the rise! His left lung is showing some overall improvement as well! He will remain on the higher airway pressure until he can sustain his O2 levels and until the next x-ray shows the lobe has been fully reinflated. […]

So far we’re having a stable day with some improvements as well! His collapsed lung is no worse and no better than yesterday, so he remains on a higher airway pressure. His blood gases were decent enough for them to wean him down to 58 on the Delta p. Toward the end of the evening, […]

Tyler had a pretty bad gastric bleed today, so they ended up taking him off the defibrotide (which causes bleeding) and keeping him at a Delta p of 58. The bleeding is either from an ulcer or gastritis, likely due to all the steroids he’s taking. One more thing for his poor body to heal […]

Ty is not doing well – his lung still hasn’t reinflated and may be doing worse, because his blood is becoming very acidic again. He needs a risky bronchoscopy to try to reinflate his collapsed lung. The doctors want to meet with us at 2:00 to make sure we understand the risks. Please pray for […]

Tyler is too unstable to perform the bronchoscopy he needs to open his right lung. His blood pressure dropped very low today numerous times and he requires medication to bring it up. His CO2 gases have risen above 100. All his vent settings have been increased. They are putting him back on two antibiotics they […]

Tyler is worse today, and we’re praying this isn’t the beginning of the possible downward spiral the doctors told us about when kids stay on an oscillator too long. He seems to have yet another new lung infection. His right upper lobe has recollapsed, and both his lungs are now looking more hazy with diffuse […]

We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed….We do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day (2 Corinthians 4: 8-9,16) I am confident of this: I will see […]

Tyler’s attending doctor said that Tyler’s left lung is now near collapse, his right lung is still partially collapsed, and both lungs now look very diseased. She believes their condition may not be recoverable. Ron spoke with another PICU doc who has been here for over 25 years, and his opinion is that the next […]

Ty is a little worse today. His O2 support is up to 85% on the vent, and his CO2 got worse, requiring a higher vent setting as well. His blood pressure is dropping lower, despite the support of norepinephrine. We know the doctors believe his body is choosing a course leading to death, but they […]

Today the docs finally gave in and let Ty have the bronchoscopy we’d been asking for since Friday. They thought he was too unstable, but we didn’t want any stone left unturned since they were telling us he is dying anyway. Tyler shocked their socks off by coming through the procedure like the champ that […]

Tyler’s right lung looked much worse on xray today, his blood pressures have been running low, and his stomach continues to bleed. However, his blood gases have been better and they were even able to make some weans on the oscillator. He presents a confusing picture! Tyler’s liver, kidneys and heart are doing well; it’s […]

Tyler’s day was really pretty good considering the doctors’ predictions yesterday. Although his lungs continued to look their worst yet on xray, his blood gases were good enough that they weaned him twice on the oscillator. Also, there were times throughout the day where Tyler did not require any medication to maintain a good blood […]

Tyler’s still with us. It’s really hard to summarize his condition right now. Again, his lungs looked much worse on xray today than even yesterday. Clearly they are going in the wrong direction. The bronchoscopy has not given his medical team any information as of yet that is useful for treatment. He’s still fighting against […]

Prayer Vigil Tonight 7-8 pm Crossroads Sanctuary Join us for this time of prayer as we seek God for a miraculous healing of Tyler McGinn. We will also pray for any requests that you bring. There is power in prayer! Crossroads Church of the Nazarene 2750 Rogers Ave Ellicott City, Maryland 21043 www.crossroadsnaz.org crossroadsoffice@gmail.com