day 8 post transplant
Today is Day 8 post transplant. I don't know how else to say it other than our boy is extremely ill. He is getting plenty of attention around here. His fever continues to range between 100 and 104, despite fever reducers. Every inch of him is hot to the touch. He...
trying to avoid the picu
Tyler narrowly avoided the ICU all last night. His blood pressure had to be monitored every 15 minutes, and his fever wouldn't break. Tyler had almost no sleep and was incoherent at times. They added Vancomycin to his other heavy hitting antibiotics. A bedside...
rough day
Tyler was pretty miserable today. He's just sick and tired of being sick and tired. We thought he was starting to feel better, but then he spent the afternoon retching from his mucositis. His blood pressures dropped very low right about the same time he spiked...
a new concern
Tyler’s fever remained high this morning, and a new concern arose. Tyler’s bilirubin levels have steadily increased over the past few days. Post-transplant, this is usually an indication of Veno-Occlusive Disease (VOD). VOD is when the small veins leading to the liver...
and the storm arrives
Tyler was doing really well until this morning, and for that we are so VERY thankful! Today he developed full blown mucositis and has had a fever. He's on a broad-spectrum antibiotic while they wait to see if the cultures grow anything identifiable. His mucositis...
the calm before the storm
Just a quick update. Tyler continues to do well! He is in the calm-before-the-storm phase. The immediate effects of the chemo and transplant are mostly over, except for fatigue. His counts are dropping lower, and the early stages of mucositis started last night. ...
first day post transplant
Today has gone pretty well so far! Tyler wasn't able to sleep well the rest of the night due to continued bouts of nausea and vomiting. By late morning, he was up and was finally disconnected from his leads and tubing so he could take a VERY welcomed shower. This...
all done!
The transfusion is complete. Tyler became very ill during the procedure - violent vomiting, chills, headache and high blood pressure. We were told this is normal, especially since the cells were an incompatible blood type. He is now asleep, but will still be...
new cells going in!
Tyler is now receiving his new stem cells!